SIMONE UPDATE

Getting off a ventilator is not always good news...

Being put on a ventilator because you can't breath is not always the best.

Yes our Mone is off the vent, in a room, but she is not the Mone we knew before.

Minta and I spent a good half hour yesterday speaking with the 

Doctor and what his belief is for Mone.

A little back history, the Tuesday before this illness,

Minta and I met with Mone and a lawyer to go over her final wishes.

We discussed end of life treatment and she clearly told us both

that if the time came she only wanted comfort measures,

she did not want to be "kept alive".

Perhaps had this happened in a different situation, we may

have not allowed the ventilator, but she has now come off.

We are now witness to a shell of the woman she was just weeks ago.

Her brain function is not what it was, she cries for our parents

and cannot distinguish dreams from reality.

It kills me more that she seems frightened and distraught

rather than at peace. Yesterday it was decided that she will go

on hospice. If by some miracle she does get discharged back to the

nursing home, she will not be going back to the hospital as

the goal now is to keep her comfortable and let her go when her

time comes. Her prognosis is poor but like all deaths, 

we cannot put a time or a date on that.

Thankfully the sweet Doctor of yesterday prescribed medication

that has allowed her to rest and be less fearful.

He also reassured us the Hospice was the way to go and

they can almost assure us that she will just go to sleep and not

suffer in her transition to the next life.

Sister are coming in the next few days to help us with her care and

our goal remains to help her through this cycle of life.

When one begins crying for their "Mommy and Daddy"

and wanting to go home to Dursette Lane, where we grew up,

its time for her suffering to end and ours to begin

as we will mourn her loss, the loss of our oldest sister.

Thank you to everyone who has reached out to us with 

thoughts and prayers.

We will always be grateful.